This is Jami.
Jami is a 27-year-old spunky blonde who works 40 hours a week. And then has dialysis for 20-25 more hours. And then goes to the gym to workout. And then also has to juggle the normal every day things like eating, friends, family, housework… I don’t know how she does it all, but she does. Because she has to. She wasn’t given a choice.
The people who know that her kidney is failing know because she’s told them. Not because she acts sick. She’s the most active person I know. She really does have a genuine love for life and the people she surrounds herself with. I asked Jami if she would send me her normal daily routine so that all of you could have an inside look into what her life is really like. In normal Jami style, she ended the message to me saying “I guess it’s better than not living at all. That’s pretty much my life right now. It could be a lot worse.”
3:30am- Wake up
Dialysis exchange, weigh, take 2 blood pressure readings, take temperature, medicine, weigh exchange bag, take pulse and write it all down.
Twice a week, in addition to the above list, she also has to add medicine to her dialysis bag.
5:00am – Work
10-11am – Lunch. Repeat above dialysis procedure for an hour.
A normal lunch/dinner would include lean meats, fruits or veggies. She does have a restricted diet. No dairy products and a few various other things.
4:30pm – Leave work.
5:00-6:00pm – Gym
Go home, shower, eat, get bags and supplies ready for the next day.
8:00pm – Repeat above dialysis procedure again. For the third time of the day.
9:00pm – Bed time
So, there it is. If you have any questions, please comment below. I’ll answer them if I can and if I don’t know then Jami can reply. There really isn’t much to update you on right now as far as the donor testing goes. I had to update my personal insurance policy and that will go into effect on February 9th. So, until then not much is happening. After February 9th, I will have my blood drawn and tested to see about tissue compatibility and blood compatibility. If both of those are a match, then we continue on the testing process. I did have a mini-phone interview and that went well. It was similar to the paperwork I filled out and mailed back. My blood pressure is “ideal” and there were not any red flags. On paper everything looks great. But, like I said, for right now we are just waiting.
Again, Thanks for all of the kind words. You are appreciated. xoxo